By Dawn Brown, Director of the National Alliance on Mental Illness HelpLine Services, as told to Danny Bonvissuto
My son, Matthew, was diagnosed with schizophrenia when he was 8 years old, which is rare as the condition usually manifests in late teens or early 20s.
At 18, he had a psychotic break and needed hospitalization. It took time to find effective treatment for him.
After finding a treatment plan that addressed his symptoms, he became treatment-compliant by taking his medication, attending appointments with his psychiatrist and therapist, and maintaining his overall health and wellness.
Now, at 38, he enjoys life, has friends, and engages in activities during the day. However, it has been a journey.
The most challenging part is when someone first starts experiencing symptoms. It can be tumultuous, but with time, things improve. A supportive and informed loved one often plays a crucial role in the outcome for a person with schizophrenia.
‘The Perfect Storm’
When individuals begin to exhibit symptoms of schizophrenia or experience full-blown psychosis, they often resist treatment. This resistance creates a challenging situation for parents and caregivers as the individuals are adults and can make decisions about their treatment.
Listen and Empathize
When trying to get someone to engage in treatment, it is important for family members to listen attentively to the individual’s experiences. While you may not agree with delusional beliefs, showing empathy can be impactful.
If they believe someone is targeting them, acknowledge their fear and worry.
It is essential to empathize with their reality and seek motivation for them to pursue treatment. Many individuals with schizophrenia struggle with sleep issues, which treatment can help address.
Support them in achieving their goals and becoming a recovery partner, working together to find solutions.
At First, Treatment Is Trial and Error
Many individuals discontinue treatment due to the lack of effectiveness or severe side effects of schizophrenia medications. It often involves trying different medications initially to find the suitable one.
Sometimes, the side effects can be challenging, such as weight gain. Despite unpleasant side effects, understanding the necessity of medication is crucial for managing symptoms.
Encourage persistence in seeking treatment options and working closely with a psychiatrist for effective care.
Explain What The Medications Do
Individuals with schizophrenia should be fully informed about the medications they are taking to participate in their treatment fully. Understanding the benefits and risks of medications is crucial.
Positive Reinforcement
After the medication proves effective and symptoms improve, engage in a conversation about the positive results to reinforce the importance of medication compliance.
Encourage logical thinking about the cause and effect of medication on their well-being.
Taper Treatment if It’s Not Working
Abruptly stopping treatment for schizophrenia is not advisable. Encourage communicating with the psychiatrist if the medication is ineffective or causing undesirable side effects.
Listen respectfully to their concerns and explore alternative treatment options. Patience is key in finding the right combination of treatments that work for the individual. Changes in medication may take time to show results, so discuss how it can be least disruptive to their lifestyle.