By Jean Rommes, as told to Kendall Morgan
I became aware of the possibility of having chronic obstructive pulmonary disease (COPD) in 1985 after reading an article about it. However, it wasn’t until 2000 that I decided to address it with my primary care doctor.
After a spirometry test revealed that my lungs were only functioning at 37%, I received a definitive COPD diagnosis. Treatment options were limited at that time, and inhalers were prescribed to alleviate some symptoms. Despite the treatment, I found myself struggling with daily activities and even experienced mild depression.
All changed dramatically in 2003 when I had a severe episode of respiratory distress while taking a shower. This led to my hospitalization due to respiratory failure. It was a frightening experience that prompted me to take control of my health.
Following the advice of my doctor to lose weight and improve my health, I embarked on a journey of diet and exercise. Additionally, I explored the possibility of participating in COPD clinical trials to find alternative treatments. Although I didn’t qualify for the trials, the knowledge and insights gained were invaluable.
Considering my relatively young age and desire for better health, I decided to participate in other COPD-related clinical studies. The hope of contributing to future advancements in COPD treatment was a motivating factor for me and my family.
My involvement in COPD advocacy and education has been significant in recent years. Engaging in various activities related to clinical trials and patient perspectives has allowed me to contribute to the advancement of COPD research and treatment.
Thanks to ongoing research, there are now more treatment options available for COPD patients. Exploring these options, including clinical trials, can be beneficial, especially with the guidance of a pulmonologist involved in research.
Living well with COPD is achievable with the right support and information. By getting involved in COPD-focused groups and staying informed, individuals can discover opportunities for better management of their condition.